Monday, February 10, 2014

Medical update: drug trial end

Hi everyone,

As many of you may have heard, after meeting with our medical team, and weighing my own experience with the drug trial we began in September (little evidence of benefit and some evidence of detriment), Amy and I decided to end that drug trial and return to our search for therapies that will benefit at my condition. We feel we are already making progress and hope to update you soon. We are deeply grateful to the doctors and administrators at the University of Utah who made this trial possible for us, and to all of you for your support, prayers, and faith. You are truly heroes.




  1. Seth,
    As far as heroes go, you and Amy deserve that title in my book...
    Love you to the 'nth...
    thank you both for what you are teaching me.
    aunt Nancy

  2. Hi Christensens,
    I googled moving to Hawaii and stumbled upon your incredible blog. You have such a beautiful family.
    I'm sure you've explored everything out there and I know almost nothing about ALS, but I just wanted to mention that the Paleo diet has helped people with MS and other autoimmune conditions. like this person We ourselves (family of 5) have been on it for the past 6 years with much improved health (and waistlines) I really hope you're not offended by this comment I just had to do it because feel like I know you guys and you're such amazing people. All the best, you are in my thoughts <3 Maya